Page tree
Skip to end of metadata
Go to start of metadata


  • The Patient Choice Technical Project Community Update Call and Pilots Launch will be conducted on Friday, May 5th, 2017 at 11am ET.
    • The meeting information is shown below:
      • WebEx URL
      • Dial-In: 1-650-479-3208
      • Access Code: 662 315 659


    NameNext MeetingAccess Information
    Phase 2 Use Case Development Work Group

    Friday, April 28th, 2017 at 11am ET


    Dial-In: 1-650-479-3208
    Access Code:  662 315 659

    If you plan to access the Webex, please join via the meeting hyperlink and dial the provided Attendee ID # after the Access Code




Project Overview

  • This project seeks to address patient trust of health information exchange as the way health care providers and participants share and access health information.
  • The aim is to assist the healthcare ecosystem by analyzing and developing technical standards to fulfill the technical capability for implementing and sharing individual consent (basic and granular choice) for the sharing of health information in healthcare settings and in a research environment. 

Project Goals

Phase 1: Basic Choice

  • To develop Basic Consent Use Cases and Functional Requirements which can be used to guide a Piloting process
  • Conduct pilots which test the functional requirements and scenarios described in the Use Case Development Phase
  • Develop a best practices implementation guide based on lessons learned from piloting efforts.
  • Align work efforts with Standards Developing Organizations (SDO) when possible
  • Develop implementation guidance in form of a standard or artifact

Phase 2: Basic Choice for Research Consent and Phase 3: Granular Choice

  • Build upon artifacts and lessons learned from Phase 1 and repeat the process for Phases 2 & 3

Project Contacts

ONC Lead

Rose-Marie Nsahlai

Project CoordinatorJohnathan
Project ManagerAli
Project SupportSaurav
SMEAmber Patel 




  • No labels